Join us for our annual Conquer Chiari Walk Across America on the 21st and 28th of September!

Join us for our 1st annual Strike Down Chiari National Bowling Tournament on November 9th, 2024!

smiling friends

Privacy Policy

C&S Patient Education Foundation takes your privacy very seriously, especially given the nature of this web site and newsletter.

While it is necessary for us to collect information, in general we will not share this information with third parties. The exception to this is submissions that are chosen for publication may include the submitters name and town of residence. Also, if donors explicitly say they wish to be recognized on the website, their names will be listed.

The following details the information collected at various times:

Site Visitors

In order to create a better web site, we will use Cookies to collect basic information from site visitors. This information will not be shared with third parties.


To verify transactions, it is necessary to collect personal information from donors such as full name, address, phone number, and email. This information will not be shared with third parties and access to it will be restricted both physically and electronically.

For credit card processing, we use an established e-commerce provider and employ SSL security.

Personal Medical Information

We will not share or divulge any medical information that is gleaned from your interactions with us unless it is intended for publication. Any medical information that is revealed as part of a submission for publication, or an interview, will not be considered private.