Conquer Chiari is the Largest NGO Funder of Chiari Research
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What Can I do to Help?

Conquer Chiari With Us Today!

Conquer Chiari wouldn’t be where we are today without our dedicated volunteers and CCWAA organizers, who donate so much of their time and energy. Please join us today! You can start by completing one or more of the options below. If you have any ideas or questions please email Heather Nebel at hnebel@conquerchiari.org

CCWAA

The Conquer Chiari Walk Across America is a series of local awareness and fundraising walks held across the country on the 3rd and 4th weekend of September (Chiari Malformation Awareness Month) every year. Walk planning begins in January.

Create a fundraiser

Awareness & Fundraising happens ALL year.


Conquer Chiari is looking for 1,000 Chiari Heroes to each raise $1,000 (or more), so that together we will have $1 MILLION to Conquer Chiari!
For people that want to support our mission, but don't have the time it takes for a larger event like Conquer Chiari Walk Across America, we welcome Individual Fundraising efforts. If you are interested in organizing a fundraiser that involves selling tickets, requires insurance, or signed contracts, please email hnebel@conquerchiari.org and fill out our Fundraiser Proposal Form to get started. Check out some of past fundraisers here

Write a review

If you love our work then tell the world! You have an opportunity to help us make even more of a difference in our community. GreatNonprofits-a review site like TripAdvisor-is honoring highly reviewed nonprofits with their 2022 Top-Rated Awards. Won't you help us raise visibility for our work by posting a review of your experience with us? All reviews will be visible to potential donors and volunteers. It’s easy and only takes 3 minutes! Go to GREATNONPROFITS to get started!

Donate your brain

Thank you for your interest in donation. Please find the link below to register to The University of Maryland Brain and Tissue Bank. You will receive a code when you complete each part of this online registration form or when you choose to save and return to this form. WRITE DOWN and SAVE this return code! If you do not save the return code, you will have to start the registration or part of the registration over. UMBTB does not have the return code to give you.

If you have/had any of the below, please contact UMBTB via email at btbdonors@som.umaryland.edu before completing the online registration:

  • Cancer treated with chemotherapy
  • Stroke
  • Known Infectious communicable disease (HIV, Hepatitis, CJD, etc.)
  • Have been on a life supporting ventilator
  • Active sepsis (at time of death)

Our website has further information about the donation registration and collection process. Brain Donation | University of Maryland School of Medicine (umaryland.edu) Should you have any further questions while completing the forms, please don’t hesitate to email btbdonors@som.umaryland.edu.

Participate in Research

Chiari Family Study

Donate Your Brain

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